We are a small organization, but we have made a significant impact for those affected by Phelan-McDermid Syndrome. We need help communicating all the good work that is happening. We get so busy doing work, we don't always promote what we do. We see big change coming on the research front and we need to let our families and funders know what has been done and what we plan to do. Your help will make a tremendous difference to families around the world.
We currently have financial data and family stories which should make it easy for you to get started. We also have program director and financial director and the ability to provide any other information you need.
Every year, our families participate in a fundraiser that was created by a mom called "Phelan Lucky". Our families face enormous challenges every day, but still remain hopeful and thankful for the connections they have with other PMSF families - Phelan-Lucky to have each other.
It is the MISSION of the Phelan-McDermid Syndrome Foundation to improve the quality of life of people affected by PMS worldwide by providing family support, accelerating research and raising awareness.