Cedar Grove, NJ, USA
Posted by
Jeanne B.

Volunteer Manager

Posted Date
Jan 3, 2019
Virtual volunteer opportunity
Impact statement
This project will save us $2,397 , allowing us to This money will allow us to be compensated for the work that we are doing in any case. I feel this as a life's mission: Having patients' take charge of their data and get paid for it.

Project Details

What We Need
  • A compelling narrative, or set of stories
  • Persuasive copy that can be used in appeals to donors, annual reports, grant applications, and media relations
  • Popular examples: Organization's founding story, a program achievement or milestone, a look back at the past few years, organizational backgrounder, etc.
Additional Details

I am working in the Blockchain space. I need to have a compelling story. I have had some success with this. I need to move forward in 2019 as a leader.

What We Have In Place
  • We currently have surveys showing the interest of our cystic fibrosis communit, which should make it easy for you to get started. We also have blogs and assignments to write more, and we are respected, and the ability to provide any other information you need.
How This Will Help

This is the gist of my goals for the upcoming year. I want to bring my CF community into the Blockchain space through a pilot that I am working on with I am speaking in Washington DC on January 31st. The FDA will be present. I want to be able to tell the story clearly and passionately.

Project Plan

Prep: Information Gathering
  • Volunteer Manager and Professional discuss the objectives of project and key audiences
  • Volunteer Manager provides Professional with relevant background materials (e.g., annual reports, white papers, brochures, organizational history)
Milestone 1: Storytelling Framework
  • Professional presents and discusses primary story angle(s) to the Volunteer Manager
  • Volunteer Manager facilitates interviews between Professional and individuals willing to share their story (if applicable)
Milestone 2: Document Creation
  • Professional shares draft with Volunteer Manager
  • Volunteer Manager provides Professional with up to two rounds of feedback
Milestone 3: Wrap-Up
  • Professional submits final version
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About The Org

Our Mission

The non-profit is organized exclusively for charitable, scientific, and educational purposes, more specifically to provide to the on line cystic fibrosis community education, learning tools, and access concerning scientific genetic testing, healthcare products, and product information related to cystic fibrosis and its co morbidities, (pancreatitis, CFRD, gastro-intestinal disorders, transplants for lungs, liver, and kidneys, sleep disorders, psychiatric, psychological, sinusitis, multiple bacterial infection strains, genetic mutations and more).